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TikTokdoctor.bing
Why ME/CFS is misunderstood 👇 “I rested for 2 days to be here for 2 hours” For many people living with ME/CFS, long covid and other post-viral conditions, that’s not an exaggeration. A 2-hour event can often consume several days of their available energy. To make it possible, they may spend days conserving their energy beforehand, cancelling other activities, and carefully planning around it. Then they arrive and hear: “You look fine.” What people don’t see is what happens next. The low energy.
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Why ME/CFS is misunderstood 👇 “I rested for 2 days to be here for 2 hours” For many people living with ME/CFS, long covid and other post-viral conditions, that’s not an exaggeration. A 2-hour event can often consume several days of their available energy. To make it possible, they may spend days conserving their energy beforehand, cancelling other activities, and carefully planning around it. Then they arrive and hear: “You look fine.” What people don’t see is what happens next. The low energy.
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The results finally showed significant inflammation, and I’ve now officially been diagnosed with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). My neurologist already knew I was dealing with chronic fatigue symptoms for a long time, but having this diagnosis finally gives more context and validation to so many of the long COVID symptoms I’ve been experiencing. What honestly blows my mind is that regular MRIs never showed any of this inflammation 🤯 It really goes to show how import
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Turning the impossible into inevitable, outnumbering STS no is not an assurance of a round win 🥶
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Thanks to everyone who sent an email, the city council made some movement, but we haven’t heard anything since. Send an updated email now!
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