News

Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...
The use of salbutamol may improve upper limb strength and aid breathing in young children with spinal muscular atrophy, an analysis found.
Measures related to the body's muscle composition improved in SMA children on Spinraza, correlating with better motor function, per a study.
Lexi and Eric, who both have SMA, grew up together and fell in love — building a life full of humor, heart and figuring it out as they go.