Following Joe’s passing, longstanding volunteers Kate O’Donnell and Amy Barry stepped forward to carry the torch as Co-Chairs ...

The CF Foundation expresses grave concern and strong opposition to the proposed cuts to Medicaid considered by Congress, ...

Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.

After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to ...

On behalf of the Cystic Fibrosis Foundation, we submit the following statement for the record expressing our grave concern and strong opposition to the proposed deep cuts to the Medicaid program ...

Dear Speaker Johnson, Minority Leader Jeffries, Majority Leader Thune, Minority Leader Schumer, Chairman Guthrie, and Ranking Member Pallone: The undersigned 37 organizations represent millions of ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...

Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...

In early 1998, a teenager with cystic fibrosis from Florida posed a question to a CF community email listserv, “Why is there no national cystic fibrosis awareness day?” Dozens of community members ...

Dear Chairs Capito and Aderholt and Ranking Members Baldwin and DeLauro: The undersigned health and research coalitions and organizations write to express our concern regarding the Administration’s ...