ORLANDO, Fla. — This last week of February marks Rare Disease Day. This day aims to raise awareness of rare diseases and improve access to treatment. For four years, now 27-year-old Tayler ...
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Connecticut Leads the Way in Rare Disease Genetic Testing as We Enter Cerebral Palsy Awareness Month(WTIC News) _ March is Cerebral Palsy Awareness Month. Dr. Paul Kruszka is Chief ... Dr. Kruszka explains that while a rare disease is a condition that affects fewer than 200,000 people, there ...
Rare Disease Day is an international initiative aimed at raising awareness of rare diseases by sharing the experiences of patients and presenting groundbreaking research toward treating and, in some ...
“Raising awareness for rare diseases is about making sure that families feel seen, heard, and supported. High Hopes is doing incredible work to provide children with access to therapy and ...
participating in Rare Disease Awareness Events sponsored by partners such as the FDA and NIH, hosting a Hill Briefing during National Minority Health Awareness Month in April, and continuing to ...
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