WFTV24d
Recognizing Rare Disease Day raises awareness for undiagnosed patients
ORLANDO, Fla. — This last week of February marks Rare Disease Day. This day aims to raise awareness of rare diseases and improve access to treatment. For four years, now 27-year-old Tayler ...
Audacy on MSN13d
Connecticut Leads the Way in Rare Disease Genetic Testing as We Enter Cerebral Palsy Awareness Month
March is Cerebral Palsy Awareness Month. Dr. Paul Kruszka is Chief Medical Officer at GeneDx, a commercial laboratory ...
U.S. News & World Report29d
US Health Agencies Postpone Rare Diseases Event in an Unusual Move
A two-day meeting aimed at raising awareness among policymakers and public about rare diseases scheduled for the end of the month has been postponed, the U.S. Food and Drug Administration's ...
Gulf News9d
High Hopes champions rare disease awareness in the UAE’s Year of Community
“Raising awareness for rare diseases is about making sure that families feel seen, heard, and supported. High Hopes is doing incredible work to provide children with access to therapy and ...
Yahoo Finance25d
Rare Disease Diversity Coalition to Host 2nd Annual RISE Awards on the Eve of Rare Disease Day
participating in Rare Disease Awareness Events sponsored by partners such as the FDA and NIH, hosting a Hill Briefing during National Minority Health Awareness Month in April, and continuing to ...