The organization is coordinating this initiative in hopes of raising awareness about all rare ... home or neighborhood with the three rare disease colors. Here are the three steps to participate ...
Hutchinson noted that several sites, including the Peace Bridge, Niagara Falls, and the Electric Tower building downtown, participated in the #LightUpForRare initiative to raise awareness by ...
The three main challenges in addressing rare diseases are awareness, accessibility, and affordability. Many healthcare providers are unfamiliar with rare diseases, leading to a prolonged ...
The goal for Parkinson is to take people out of their “siloes” and thinking creatively, and to raise awareness about rare diseases among the general public. She said: “Much of the ...
Jennifer Wound of Genzyme illustrates the power of using film in rare disease awareness campaigns by discussing Genzyme's 'Facing Fabry Together' patient video. Disease awareness campaigns ...
Despite their name, rare diseases have a surprisingly widespread impact. Recognizing the unique needs of those living with rare diseases, health experts, advocates, and patient groups called for ...
Family Day and Rare Disease Awareness Day coincide on the calendar, and to me, this is an important reminder: Every family is a family, no matter how they came to be. ‘WE ARE not asking for ...
During this milestone year, the coalition has achieved remarkable growth, participating in Rare Disease Awareness Events sponsored by partners such as the FDA and NIH, hosting a Hill Briefing ...
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